I can now report some very good news for Phoenix Nest Inc in our efforts with our wonderful collaborators at LABioMed – we now have a couple of grants to work on treatments for Sanfilippo B and D. It would be great if we could find VC or angels that would help us get these …
Tag Archive: Sanfilippo D
Aug
14
A needle in a haystack
A busy day before going to the ACS. We have put a couple of similar posts (here and here) out in an attempt to try to identify some Sanfilippo type D (MPS IIID) patients or at the very least to get their families to register in the registry . This is like finding a needle …