Tag Archive: Rare disease day

Mar
03

A storify of my Rare disease day tweets

Friday I was at the NIH for rare disease day – here is my Tweet storify. [View the story “Rare disease day” on Storify]

Mar
22

Who decides on disease days and do they make a difference?

I am becoming aware that virtually every day of the year is special. I don’t mean that in some philosophical way but perhaps you have noticed a recent trend? It started for me a few years ago when I started taking note of ¬†World TB day. This falls on Sunday the 24th march 2013. I …

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Mar
02

Rare disease funding disparity

Day 2 of the NIH rare disease day did not disappoint. Lets just say it was all about the numbers. My extensive tweets can be found with the hashtag #RDD@NIH. John Gallin from the NIH clinical center has 1255 physicians, 240 beds and studies 463 rare diseases. Danilo Tagle from NCATS described their lab on …

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