Tag Archive: Pistoia Alliance


A new year and a New start – leaving the Pistoia Alliance Board of Directors

I hope I can say 2014 is a New Start. Due to my increase in time contributed to working on rare diseases through Jonah’s Just Begun, the Hereditary Neuropathy Foundation and Hannah’s Hope Fund my “free time” has taken a bit of a squeeze. In addition when combined with the 3 NIH grants I am …

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