Perhaps not surprisingly with all the activity around Rare Disease day over the last month, I have focused on this and it does not appear to be slowing down in terms of momentum. I was contacted today by a representative of a rare disease foundation to request adding their disease into the ODDT app. Over …
Tag Archive: ODDT
While at the recent World Symposium meeting on Lysosomal Diseases, Jim Radke from Rare Disease Report interviewed me on the ODDT app. Here is the video. A big thank you for helping spread the word.
*(Well maybe for Tuberculosis, Malaria, Huntington’s disease, HIV/AIDS, Chagas Disease, Leishmaniasis, Hunter syndrome, Giant Axonal Neuropathy, H5N1, Fibromusclar Dysplasia, Sanfilippo Syndrome etc) Helping collaborators with their NIH grants (R01, U19, SBIR, STTR, etc.), one is struck by something that has to be done early in most cases yet is usually left till last. That is …