Tag Archive: MPSIIID

Sep
09

Raising awareness for Sanfilippo Syndrome IIIC and IIID – could Microsoft help us find our patients?

Previously I had written about the need to find patients for Sanfilippo Syndrome IIIC and IIID to join a registry and take part in a Natural History Study. In fact I keep writing about it in as many places as I can. In addition we are actively working with academics to develop treatments so it …

Continue reading »